Welcome to myasthenickids.org – the support network for myasthenic children, young people and their families.

Myasthenia (noun): Abnormal muscular weakness and fatigue

Myasthenic (adjective): Person with a myasthenia

This website is developed by a group of parents of children with either Congenital Myasthenic Syndrome, Myasthenia Gravis or Lambert-Eaton Myasthenic Syndrome, with support from Contact a Family and Myaware.

A key element of our existence is to provide forums to discuss the condition, and to share experiences and stories. A crucial part of that has become our Annual Children’s Weekends, an excellent time to come together and meet one another; click here to read about the Myaware Kids Children’s Weekend.

If you wish to contact us please email info@myaware.org.uk


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Latest posts from MG Kids

Children in Need – Sufjan’s Story

Interesting article from BBC Children in Need about young Sufyan who became affected by MG in his early teens…
Link here…

MGA UK becomes Myaware

Welcome to MyAware…!
After much consultation with all stakeholders, we are excited to announce the Brand Change of Myasthenia Gravis Association …

Children’s Weekend 2014

27-29 June 2014 Best Western Moat House Hotel,
This weekend is our great gathering where we can meet, chat, learn and …