myasthenickids.org fundraises as the MGA National Children's Branch on behalf of the children and for research into myasthenia.
A key focus of our work is contacting and connecting families of children with myasthenia. The most expensive, yet effective means of enabling parents to support each other within the network is face to face meetings and weekend events.
The first Children's Weekend was a resounding success - for the full story click here.
In 2010 we aim to hold two such events bringing families together.
We also intend to extend the outreach work to find families, provide advice and support (especially relating to access to education for our children) and raise awareness among health professionals about childhood myasthenia.
